The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome
Your generous, tax deductible donation to the Usher Syndrome Society will change the lives of 400,000 people with Usher syndrome and possibly over 1,000,000 people worldwide with retinitis pigmentosa. Thank you for helping us to find a cure!
Where will your donation go?
100% of your donation will directly fund research for all types of Usher syndrome. A number of clinics, medical schools and hospitals throughout the world are close to a treatment that could reverse, stop or slow the progression of USH but funds are limited. Our goal is to help support these researchers.
The Usher Syndrome Society Exhibits and Educational Events are crucial for introducing Usher syndrome to the world. Our goal is to educate and identify as many people with Usher syndrome as possible. This will accelerate research as there will be a bigger pool of participants in research, trials and provide us much needed information about how Usher syndrome progresses. In addition, we will grow our community of those with Usher syndrome, thereby increasing our support network.