Welcome to Wanderlight Moments! My name is Hannah Corderman. Originally from Boston, Massachusetts, I am a 25-year-old bucket-list traveler and rare disease advocate.
Eight years ago, I was unexpectedly diagnosed with Usher syndrome, a rare genetic cause of combined deafness and blindness. With no present cure for Usher syndrome, I will eventually lose most, if not all, of my eyesight. I was born hearing impaired, but it is unknown whether or not I will go completely deaf.
With this rather grim diagnosis, it would have been all too easy to fall into a cognitive state of darkness under the weight of this progressive disease.
I decided to take a different path.
Once in a while it really hits people that they don’t have to experience the world in the way they have been told to.Alan Keightley
Currently, I am in graduate school full-time (at Vanderbilt University in Nashville, Tennessee) and exploring and checking off bucket list items part-time. My hearing loss remains relatively stable, but my eyesight is getting worse. Right now, I’m almost fully night-blind and unable to see in dimly lit areas. I’ve also noticed some ‘blind spots’ starting to show up during the daytime.
If there is one silver lining to having Usher syndrome, it’s that there is no longer such a concept as putting things off to the future. I can truly say that I live in the moment and, unexpectedly, I am grateful that I feel so motivated to make the most of each day of sunlight I am fortunate to witness. (Isn’t everyone always saying how short life is anyway?)
I put together this personal blog, Wanderlight Moments (wanderlust inspired by the light!), to share my unique travels, bucket-list adventures, and authentic experiences living with Usher syndrome. I have two goals with this blog:
1. Inspire others to travel the world, despite life’s unexpected challenges.
2. Raise awareness for Usher syndrome.
I am hopeful that together we can discover a cure.
As always, thank you for reading and please feel free to reach out to me directly if you have any questions about my life, Usher syndrome, or just need some specific travel advice!